Hypertrophic Cardiomyopathy Program– Genetic Heart Conditions | MedStar Health


Comprehensive care for hypertrophic cardiomyopathy (HCM) patients

Hypertrophic cardiomyopathy (HCM) is the most common genetic heart condition. The HCM program at MedStar Union Memorial Hospital in Baltimore and at MedStar Washington Hospital Center in D.C., is here with specialized care from cardiac experts who diagnose, treat, and manage patients long-term.

Our patients require specialized care to maintain quality of life, reduce their chance of sudden death, and appropriately screen their family members.

Led by Sandeep Jani, MD, in Baltimore and Patrick Bering, in D.C., our interdisciplinary team of cardiac imaging experts, electrophysiologists, cardiac surgeons, and interventional cardiologists provide an individualized approach to care. The team also includes a dedicated cardiogenetics specialist, Hilary Porter, to determine genetic factors that may be involved.

The U.S. Food & Drug Administration has now approved a mavacamten for a specific subset of HCM. At MedStar Health, we have invested substantial time and resources to become one of the few

certified sites that can offer the medication safely an effectively to our patients. We are also participating in a clinical trial for second drug for the treatment of obstructive HCM.

For information about the MedStar Health Hypertrophic Cardiomyopathy program, please call:

  • Sandeep Jani
    Sandeep Jani, MD

    Baltimore Program Director

  • Patrick Bering
    Patrick Bering, MD

    District of Columbia Program Director

The HCM program treats patients diagnosed with or suspected to have hypertrophic cardiomyopathy, in addition to their first-degree relatives who may be at risk.

Program of choice

Backed by the strong reputation of the MedStar Heart & Vascular Institute (MHVI), HCM patients receive the highest quality of care. The program offers ongoing:

  • HCM management
  • Sudden cardiac death risk stratification
  • Arrhythmia management
  • Septal reduction therapies for obstructions
  • Heart failure management
  • Sports and exercise prescriptions
  • Research

Genetic counseling

A dedicated cardiogenetic specialist helps appropriately screen and treat family members who may be at risk.

Coordinated care

Being referred to the HCM program doesn’t mean you will no longer address your condition with your physician. We will keep your physician updated on your results every step of the way.

Location

HCM patients must often travel long distances for specialty care due to the complexity of the condition. Our program is accessible to patients throughout Maryland and the D.C. area, with everything under one roof for added convenience.

Testing for HCM

Patients may undergo the following tests:

Treatment for HCM

Treatments can include:

  • Medications such as beta blockers, calcium channel blockers, or anti-arrhythmic drugs to help regulate heart contractions

  • Mavacamten – a novel cardiac myosin inhibitor for a specific subset of HCM patients with concomitant left ventricular outflow tract (LVOT) obstruction

  • Surgery to implant a pacemaker to regulate your heartbeat or a defibrillator to correct dangerous heart arrhythmia

  • Open-heart surgery to remove parts of the thickened muscle or replace heart valves

  • Cardiac catheterization for septal alcohol ablation to remove excess muscle tissue in the heart

  • Lifestyle changes, including avoiding very strenuous activity

Our providers

Dr Brian Case listens to the heart of a patient during an office visit at MedStar Health. Both people are wearing masks.

Expert cardiology care

Getting the care you need starts with seeing one of our cardiologists.

Ask MedStar Heart & Vascular Institute

Have general questions for our heart and vascular program? Email us at AskMHVI@medstar.net. If you have clinically-specific questions, please contact your physician’s office.